Madeline's Surgery Part 2: Madeline and the Smaller Tongue.
Wednesday, August 05, 2009
(first let me warn you there are a few yucky pics, so if you are really unable to look at a little blood then you may want to avoid them...)
So.... After our super exciting and fun Monday and Tuesday we were off for a super SCARY and UNFUN Wednesday.
I have to say, never at the same time have I had to be so sure of something and so unsure of something in my life.
EVER.
We knew that Madeline would benefit from this surgery.
We knew it was the right decision.
But we also felt just really really mean.
Because while Madeline was having a good little baby time,
we knew what was in store for her.
This
DID NOT HELP.
So off they took her to Surgery.
And off to bawling my eyes out I went.
Surgery went really fast though!
why? Because God is Good.
They estimate about an hour and a half for surgery, but Dr. Marsh came by saying everything went great about a hour after she left my arms.
She had minimal bleeding and we were going to go and see her!
So off we went.
This is what we saw:
NOT PRETTY.
That first day wasn't fun.
But after we got to the PICU (pediatric intensive care unit)
Maddie did get to meet FRED BIRD who is the mascot for the St Louis Cardinals.
He looks like THIS:
Maddie was still coming out of her anesthesia......
and on Morphine.
So she will now have an uncomfortable feeling for her whole life when life size red birds come around.
But other then that she mostly slept and slept and slept that first day.
and that night she did not sleep much.
Not much at all.
But we understood, because it's not easy having your tongue reduced.
The next day we were off to our real room!
And a real room it was.
There was even an ICEE machine down the hall.... YAHOO! Well YAHOO for us, because no matter what happens it isn't a good idea to give a baby a frozen coke.
But on that first full day Maddie Played and Maddie swallowed milk that was squirted into her mouth and Maddie got her feeding tube out!
And we were angling to get outta there the next day!
WAY TO GO SUPER BABY!
WAY TO SHOW THEM!
WAY TO ROCK OUT TONGUE REDUCTION SURGERY!
In between Playing, milk and feeding tubes,
our new friends Abbey and Harrison came for a visit.
Harrison also has BWS and had his tongue reduction surgery about 8 months ago when he was the same age as Maddie.
He is now 16 months old, has awesome hair a wonderful tongue that stays in his mouth and can count his toes.
We think he is great!
Abbey was also wonderful and amazing and we are so soooo so blessed to know them! and we are forcing her to come and visit us soon so those of you who live by us will get to meet them someday soon!
And let me tell you...You will be blessed to know them!
(you can visit their blog HERE!)
So Continuing on.... Madeline drank her bottles all that day and all that night and all the next day!
And on that 2nd day Madeline smiled her happy baby Madeline smile and got up and rocked around on her hands and knees and we knew that our little sweetie was back!
and at 3 Dr. Marsh's wonderful nurse DeAnn came by to say "wanna go home?"
and we said YES! and we threw all of our stuff in a suitcase and ran away!
KIDDING.
First we filled up a two liter with frozen coke.
Then we had so say bye to our new FF (friends forever) Lydia & Danna and Deke.
And THEN we hit the road!
OUR FINAL INSTALLMENT: Part 3.....HOMEWARD BOUND! COMING SOON!
I have to say, never at the same time have I had to be so sure of something and so unsure of something in my life.
EVER.
We knew that Madeline would benefit from this surgery.
We knew it was the right decision.
But we also felt just really really mean.
Because while Madeline was having a good little baby time,
we knew what was in store for her.
This
DID NOT HELP.
So off they took her to Surgery.
And off to bawling my eyes out I went.
Surgery went really fast though!
why? Because God is Good.
They estimate about an hour and a half for surgery, but Dr. Marsh came by saying everything went great about a hour after she left my arms.
She had minimal bleeding and we were going to go and see her!
So off we went.
This is what we saw:
NOT PRETTY.That first day wasn't fun.
But after we got to the PICU (pediatric intensive care unit)
Maddie did get to meet FRED BIRD who is the mascot for the St Louis Cardinals.
He looks like THIS:
Maddie was still coming out of her anesthesia......
and on Morphine.
So she will now have an uncomfortable feeling for her whole life when life size red birds come around.
But other then that she mostly slept and slept and slept that first day.
and that night she did not sleep much.
Not much at all.
But we understood, because it's not easy having your tongue reduced.
The next day we were off to our real room!
And a real room it was.
There was even an ICEE machine down the hall.... YAHOO! Well YAHOO for us, because no matter what happens it isn't a good idea to give a baby a frozen coke.
But on that first full day Maddie Played and Maddie swallowed milk that was squirted into her mouth and Maddie got her feeding tube out!
And we were angling to get outta there the next day!
WAY TO GO SUPER BABY!
WAY TO SHOW THEM!
WAY TO ROCK OUT TONGUE REDUCTION SURGERY!
In between Playing, milk and feeding tubes,
our new friends Abbey and Harrison came for a visit.
Harrison also has BWS and had his tongue reduction surgery about 8 months ago when he was the same age as Maddie.
He is now 16 months old, has awesome hair a wonderful tongue that stays in his mouth and can count his toes.
We think he is great!
Abbey was also wonderful and amazing and we are so soooo so blessed to know them! and we are forcing her to come and visit us soon so those of you who live by us will get to meet them someday soon!
And let me tell you...You will be blessed to know them!
(you can visit their blog HERE!)
So Continuing on.... Madeline drank her bottles all that day and all that night and all the next day!
And on that 2nd day Madeline smiled her happy baby Madeline smile and got up and rocked around on her hands and knees and we knew that our little sweetie was back!
and at 3 Dr. Marsh's wonderful nurse DeAnn came by to say "wanna go home?"
and we said YES! and we threw all of our stuff in a suitcase and ran away!
KIDDING.
First we filled up a two liter with frozen coke.
Then we had so say bye to our new FF (friends forever) Lydia & Danna and Deke.
And THEN we hit the road!
OUR FINAL INSTALLMENT: Part 3.....HOMEWARD BOUND! COMING SOON!
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